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ARIZONA HOUSE OF REPRESENTATIVES57th Legislature, 2nd Regular Session |
House: HHS DP 12-0-0-0 | Third: 44-9-7-0
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HB2082: childhood cancer research; commission
Sponsor: Representative Bliss, LD 1
Senate Engrossed
Overview
Establishes the Childhood Cancer and Rare Childhood Disease Research Commission (Commission) under the Arizona Department of Health Services (DHS) to award grants to health care providers and research institutions engaged in clinical trials relating to research on pediatric cancer or other rare pediatric diseases. Outlines membership, duties and reporting requirements.
History
The Childhood Cancer and Rare Childhood Disease Research Fund (CCRDF) was established to support childhood cancer research. The DHS Director administers CCRDF and annually distributes CCRDF monies to health care providers and research institutions that are in Arizona, are nonprofit organizations and engaged in phase I clinical trials relating to research on pediatric cancer or other rare pediatric disease.
Currently, CCRDF consists of monies from special plate fees and renewals. Of the $25 fee, $8 is for administrative costs deposited to the State Highway Fund and $17 is deposited to CCRDF. Not more than 10% of monies deposited in the fund annually can be used for the cost of administering the fund (A.R.S. §§ 36-121 and 28-2442).
Childhood Cancer and Rare Childhood Disease Research Commission
1. Establishes the 7-member Commission under DHS to award grants to health care providers and research institutions that:
a. are in Arizona;
b. are nonprofit organizations; and
c. engaged in clinical trials relating to research on pediatric cancer or other rare pediatric diseases. (Sec. 2)
2. Requires Commission members to serve five-year terms and annually elect a chairperson from the membership. (Sec. 2)
3. Requires Commission members to recuse themselves from discussing and voting on any matter in which they have a conflict of interest. (Sec. 2)
4. Allows the following persons to serve as a Commission member on any grant application if a Commission member recuses themselves due to a conflict of interest and the Commission no longer has a quorum:
a. the Commission Director;
b. the Commission's Director designee; or
c. other DHS staff members appointed by the Director. (Sec. 2)
5. Specifies that Commission members are not eligible to receive compensation but are eligible for reimbursement of expenses. (Sec. 2)
6. Allows awarded CCRDF monies to be used in a collaborative study or research program with other facilities outside of Arizona. (Sec. 2)
7. Requires nonprofit organizations that receive CCRDF monies to only be used for the prescribed purposes even if the monies are aggregated with other monies. (Sec. 2)
8. Directs the Commission to submit a report no later than August 1, 2027, and annually thereafter to the Appropriations Committees and Health and Human Services Committees of the Arizona State Senate and Arizona House of Representatives detailing the number, amounts and recipients of the grants awarded, the resulting research, return on investment and any other relevant information. (Sec.2)
Childhood Cancer and Rare Childhood Disease Research Fund
9. Adds that CCRDF consists of monies received from legislative appropriations, gifts, donations and federal grants. (Sec.1)
10. Authorizes the DHS Director to allocate monies from CCRDF for grants awarded by the Commission. (Sec.1)
11. Makes technical changes. (Sec.1)
Senate Amendments
1. Requires the Director of DHS, rather than the Commission, to award grants as prescribed.
2. Specifies that the allocation of monies for the grants is subject to legislative appropriation, award of federal grants or a combination of both, in an amount of at least $5,000,000 for the purposes of childhood cancer and rare childhood diseases.
3. Allows the DHS Director to use up to 4% of the amount appropriated or granted for administrative costs, unless otherwise specified by the federal grant contract.
4. Requires the DHS Director to allocate monies received from issuing childhood cancer research special plates, if DHS does not receive additional legislative appropriations, federal grants or a combination of both, as specified.
5. Allows monies to be used in a collaborative study or research program with other out-of-state facilities.
6. Authorizes nonprofit organizations that receive monies from the CCRDF to use the monies for the prescribed purposes even if the monies are aggregated with other monies.
7. Requires the Commission to:
a. establish criteria for the clinical trials that qualify to receive research grants;
b. oversee the application process and review applications for the clinical trial research grants to assist the DHS Director in selecting the most credible clinical trials to which to award the research grants; and
c. ensure that all Commission meetings are open to the public and allow for public testimony.
8. Repeals the requirement that the report include the Commission's return on investment.
9. Makes conforming changes.
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13. Initials AG/TM HB 2082
14. 05/18/2026 Page 0 Senate Engrossed
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