House Ad Hoc Committee on Pediatric Autoimmune Neuropsychiatric Disorder

House Ad Hoc Committee on Pediatric Autoimmune Neuropsychiatric Disorder

PURPOSE: The purpose of the committee is to study the pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections and pediatric acute neuropsychiatric syndrome and to advise the Department of Health Services on research, diagnosis, treatment and education relating to the disorder and syndrome. Members of the committee shall be appointed by the Speaker of the House of Representatives.

MEMBERSHIP:

House Three members of the House of Representatives, not more than two from the same political party, appointed by the Speaker of the House or Representatives.

Heather Carter (Chair), Randall Friese, Vince Leach

Other Up to two pediatric neurologists licensed and practicing in the state who have experience in treating persons with Pediatric Neurolmmunologic Syndrome Disorders appointed by the Speaker of the House of Representatives.

Dr. Melanie Alarcio

Jay Cook, Banner Health

Up to two members, of whom one may have a designee as directed by the Speaker, who is a representative of a health insurance provider and one who is a representative of a healthcare provider, licensed and practicing in the state, who has expertise in treating persons with Pediatric Neurolmmonologic Syndrome Disorders, including the use of intravenous immunoglobulin, appointed by the Speaker of the House of Representatives.

Ms. Shelly Avila

Charles Bassett, Blue Cross Blue Shield of Arizona

A representative from a major Arizona translational genomics firm that has developed a statewide presence in research which assists in the diagnosis and treatment of pediatric autoimmune diseases appointed by the Speaker of the House of Representatives.

Ms. Tess Burleson, TGEN

A representative of the Department of Health Services appointed by the Speaker of the House of Representatives

Dr. Cara Christ, Director, Department of Health Services

An immunologist licensed and practicing in the state who has experience treating persons with Pediatric Neurolmmonologic Syndrome Disorders appointed by the Speaker of the House of Representatives.

Dr. Michael Daines, The University of Arizona

A representative who is a licensed nurse in Arizona with direct experience in Pediatric Neurolmmunologic Syndrome Disorders appointed by the Speaker of the House of Representatives.

Ms. Kate Fleck

A representative from a major state university that has expertise in leading research, clinics and academic efforts dealing with pediatric autoimmune diseases appointed by the Speaker of the House of Representatives.

Dr. Fayez Ghishan, University of Arizona

A representative of the Arizona branch of the PANDAS Network.org appointed by the Speaker of the House of Representatives.

Ms. Kari Kling

Two citizen advocates for the awareness, diagnosis, treatment and research regarding Pediatric Neurolmmunologic Syndrome Disorders appointed by the Speaker of the House of Representatives.

Mr. Lee Miller

Paul Ryan

Up to two neurologists licensed and practicing in the state with experience conducting research on neuromuscular disorders, obsessive-compulsive disorder, tic disorder or other neurological disorders appointed by the Speaker of the House of Representatives.

Dr. Suraj A. Muley, Barrow Neurologic Institute

Mark Ross, Mayo Clinic

Up to two parents with a child who has been diagnosed with a Pediatric Neurolmmonologic Syndrome Disorder appointed by the Speaker of the House of Representatives.

Mrs. Molly Ochoa

Dan Twibell

A developmental pediatrician or child psychiatrist who has experience treating persons with Pediatric Neurolmmonologic Syndrome Disorders appointed by the Speaker of the House of Representatives:

Dr. Sydney Rice, The University of Arizona

A representative of the National Institute of Health (NIH) or the National Institute of Mental Health (NIMH), to act as a special advisor to the Committee appointed by the Speaker of the House of Representatives.